When I first discovered I have lipedema in July 2012, there was little information available. I originally put up the website http://www.lipedema-simplified.org as a repository for the significant amount of research I had gathered for my Primary Care Physician. He was willing, and I wanted to help him to help me. I never dreamed the far-reach this work would have. As of today, there have been over 20,000 unique visitors to the website, like me I think, looking for answers about this strange disorder that can look like fat but is painful and debilitating. I can say now that there are answers and there is hope.
So I am curious, here’s a benchmark as of today, 30 May 2014. Let’s see what reach a month of outreach can have. I’ll post this map and the map from June 30 on that day and we’ll see if we can raise awareness.