June is Lipedema / Lipoedema Awareness Month

Lipedema/lipoedema was first named as a disorder/disease at the Mayo Clinic by Dr. Edgar Hines and Dr Edgar Allen in 1940.  Lipedema, known as lipoedema in Europe, is a chronic disorder of the adipose tissue generally affecting the legs, which causes the legs, and sometimes the arms, but not the feet, to accumulate fatty tissue. It’s been 74 years and only now with grass roots advocacy is lipedema receiving attention in the U.S. Help raise awareness.

Lipedema Stages 1 2 & 3

Lipedema Stages 1 2 & 3

June is Lipedema/lipoedema Awareness month. Beginning on June 1st, and all month long, I will be posting 1-3 minute short micro-documentary clips from the raw footage in process of being edited into a full length documentary. There will be postings on patient experiences, the process of diagnosis, conservative treatment: compression and MLD, lymph-sparing liposuction, information about the issues of anti-fat bias in healthcare, and interviews with many of the experts from Europe and the US including Dr Stefan Rapprich, Professor Dr Manuel Cornely, Dr Josef Stutz, Dr Reggy Schift, Professor Dr Foeldi, Dr Mark Smith and Dr Joe Dayan and several others.

Remember to spread the word about lipedema, There’s more to the story: You are not just FAT!

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About catherineofcambridge

I am a Professor at Cambridge College in Massachusetts, teaching leadership development, research methods, and psychology. I am currently completing a Ph.D. in Media Psychology at Fielding Graduate University concentrating on empowering women who experience the distortions of body image as represented in the media. I am founder of lipoedema simplified LLC, dedicated to raising awareness and providing education for lipedema/lipoedema. I am the producer of the documentary and training programs about lipoedema: You Mean It’s Not My Fault: Lipoedema – A Fat Disorder.
This entry was posted in Dr Joe Dayan, Dr Josef Stutz, Dr Mark Smith, Dr Reggy Schift, Dr Stefan Rapprich, expert surgeons, lipedema, Lipedema awareness, lipedema experts, lipoedma, Prof Dr Földi, Prof Dr Foeldi, Prof Dr Manuel Cornely. Bookmark the permalink.

13 Responses to June is Lipedema / Lipoedema Awareness Month

  1. helensamia says:

    Reblogged this on My Lymph Node Transplant and commented:
    Sharing for all those who have Lipedema or a combination of Lipedema and lymphedema. Many people do to realise they have Lipedema. Thanks Catherine for all your work

  2. lois says:

    I live in upstate NY I saw a posting in the NY bill I found it because it was one of Dr. Herbst favorite web sites last night I went back to it and it was covered by a new law with the same # as the lipedema #’s would you know who to contact? It was a great writing with loads of pictures. I just feel like we take a step forward and get knocked down a step. I also can’t find DR. for my daughter’s to get diagnosed. I was diagnosed 50 yrs. ago and have never found another Dr. that knows anything about it so I don’t know what stage I am at this time. If you have any idea’s please let me know. I am willing to travel but, not to NYC. Thank you, Lois

  3. Charlotte says:

    Hi, I think my Mum, sister and I have somethting like this. Do you know doctors in France ?

    • Hello Charlotte,
      The closest doctor I know is in Spain, Isabel Forner Cordero MD ,
      she is wonderful doctor, knowledgeable about lipedema, and also a very gracious person.
      Also several in Germany. Let me know which is closer for you.
      Best of luck to you,
      Catherine

  4. Mary says:

    Hi Catherine,
    Do you know of any doctors/surgeons in Canada who specialize in treating lipedema? I live in Nova Scotia and have only found NYC, as the closest so far. I am willing to travel for diagnosis & treatment. Should travel abroad be required, based on your research, would you be able to say who your top 3 choices would be? Any help you can provide is greatly appreciated.
    Best regards,
    Mary

    • Terry Kemp says:

      Hi Catherine, I always caution anybody with lipedema to be very careful choosing a medical therapy or surgeon. Surgery for lipedema is highly controversial among lymphologists. It has the potential to damage lymphatic vessels and cause inflammation in the area of treatment leading to tissue fibrosis and lymphedema. Even with surgery, it is essential that Combined Congestive Therapy be done before and after surgery to reduce the chances of fibrosis forming in the tissues. Choosing a Certified Therapist to treat lipedema is essential to a successful outcome.

      Best of Luck

      Terry

      • Yes what you say is very accurate Terry. Surgery has risks and needs someone trained and very aware of how to avoid tissue fibrosis and lymphedema, or at least minimize the risks. And CDT is essential to both prep and recovery. So glad you corroborate my own sentiments.
        Thanks, Catherine

  5. Pat says:

    Looking for Dr. In USA / Ohio

  6. Nancy Noyce says:

    Are there any Drs familiar with lipedema in the Boston area? I would think there would be some doctor at one of the Boston hospitals that would be familiar with this disease.

    • Hi Nancy,
      Not really, Drs McKinley and Solomon at Mt Auburn Hospital Primary Care Center
      know some, under Dr Matthew Carmody who knows more but only consults. Dr Arin
      Greene can also diagnose – he runs lymphedema clinic for adults at Boston
      Children’s Hospital. We are working to raise awareness.
      Best
      Catherine

      • Nancy Noyce says:

        Thank you so much Catherine! It’s been so discouraging that most doctors don’t know about lipedema. So glad there seems to be more awareness all the time, and it’s great to know we’re not alone! I so appreciate all you have done in this endeavor!

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