Monthly Archives: May 2014

Lipedema Awareness Continues to Grow

When I first discovered I have lipedema in July 2012, there was little information available. I originally put up the website http://www.lipedema-simplified.org as a repository for the significant amount of research I had gathered for my Primary Care Physician. He … Continue reading

Posted in lipedema, Lipedema awareness, lipedema project, lipoedema project | 2 Comments

June is Lipedema / Lipoedema Awareness Month

Lipedema/lipoedema was first named as a disorder/disease at the Mayo Clinic by Dr. Edgar Hines and Dr Edgar Allen in 1940.  Lipedema, known as lipoedema in Europe, is a chronic disorder of the adipose tissue generally affecting the legs, which … Continue reading

Posted in Dr Joe Dayan, Dr Josef Stutz, Dr Mark Smith, Dr Reggy Schift, Dr Stefan Rapprich, expert surgeons, lipedema, Lipedema awareness, lipedema experts, lipoedma, Prof Dr Földi, Prof Dr Foeldi, Prof Dr Manuel Cornely | 13 Comments

Global Survey on Lipedema / Lipoedema

Do you have lipedema/lipoedema? Let your voice be heard and be a part of a global research project. A group in the Netherlands led by Tilly Smidt is reaching out to gather data on your experiences with lipedema/lipoedema. Please take … Continue reading

Posted in lipedema, lipoedma, research | 2 Comments

The Lipedema Project

ANNOUNCING SPECIAL LIPEDEMA VIDEO PROJECT: It’s been18 months of video recording, and literally hundreds of hours of interviews and surgeries from lippy ladies, doctors, surgeons, therapists, and other experts. Are you interested in participating in a viewing of footage, as … Continue reading

Posted in lipedema, lipedema project, lipoedema project, lipoedma, uncategorized | 3 Comments

Anti-Fat Bias in the Healthcare System

So often women with lipoedema/lipedema report going to their doctors looking for solutions or even just a diagnosis and being told that it’s their fault, that they need to diet and exercise, and to come back after they have lost … Continue reading

Posted in anti-fat bias, compassion, lipedema, obesity, weight stigma | 3 Comments